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Patients' contributions to their own health care
(including papers relating to: patients' involvement in decision-making;
patients' self-management of their health conditions; and efforts to engage
patients in efforts to improve health care safety)
Entwistle VA. Patient involvement in decision making: the importance
of a broad conceptualisation. In: Edwards AG, Elwyn G. (Eds) Shared decision
making in health care: achieving evidence based patient choice. Oxford University
Press, 2009.
O'Connor AM, Bennett CL, Stacey D, Barry M, Col NF, Eden KD, Entwistle VA,
Fiset V, Holmes-Rovner M, Khangura S, Llewellyn-Thomas H, Rovner D. Decision
aids for people facing health treatment or screening decisions (review). Cochrane
Database of Systematic Reviews, 2009 issue 1.
Entwistle VA, Carter SM, Trevena L, Flitcroft K, Irwig L, McCaffery K, Salkeld G. Communication about screening: a proposed new direction. BMJ, 2008; 337 (221) a1591.
Entwistle VA, Prior M, Skea ZC, Francis J. Involvement in decision-making: a qualitative investigation of its meaning for people with diabetes. Social Science and Medicine, 2008; 66: 362-375.
Baldie D, Entwistle V, Davey P. Exploring the information and support needs of patients self-managing community acquired pneumonia at home. BMC Pulmonary Medicine, 2008; 8: 11. doi:10.1186/1471-2466-8-11.
Entwistle VA. Alternative perspectives on patient involvement in patient safety. Quality and Safety in Health Care, 2007; 16: 82-3.
O'Connor AM, Bennett C, Stacey D, Barry MJ, Col N, Eden K, Entwistle V, Fiset V, Holmes-Rovner M, Khangura S, Llewellyn-Thomas H, Rovner D. Do patient decision aids meet effectiveness criteria of the International Patient Decision Aids Standards Collaboration? Medical Decision Making, 2007; 27 (5): 554-574..
Entwistle VA, Watt IS. Patient involvement in treatment decision making:
the case for a broader conceptual framework. Patient Education and Counselling,
2006; 63 (3): 268-278.
Entwistle VA, Williams B, Skea Z, Maclennan G, Bhattacharya S. Which
surgical decisions should patients participate in? Reflections on women's recollections
of discussions about different types of hysterectomy. Social Science and
Medicine, 2006; 62: 499-509
Bugge C, Entwistle VA, Watt IS. Information that is not exchanged during
consultations: significance for decision-making. Social Science and Medicine,
2006; 63: 2065-78.
Entwistle VA, Quick O. Trust in the context of patient safety problems. Journal of Health Organization and Management, 2006; 20: 397-416.
Elwyn G, O'Connor A, Stacey D, Volk R, Edwards A, Coulter A, Thomson R, Barrratt A, Barry M, Bernstein S, Butow P, Clarke A, Entwistle V, Feldman-Stewart D, Holmes-Rovner M, Llewellyn-Thomas H, Moumjid N, Mulley A, Ruland C, Sepucha K, Sykes A, Whelan T on behalf of the International Patient Decision Aids Standards (IPDAS) Collaboration. Developing a quality criteria framework for patient decision aids: online international Delphi consensus process. BMJ, 2006; 333: 417- (online first, 22 August 2006).
Collins S, Drew P, Watt I, Entwistle V. 'Unilateral' and 'Bilateral'
practitioner approaches to decision making. Social Science and Medicine
2005; 61 (12): 2611-2675.
Entwistle VA, Mello MM, Brennan TA. Advising patients about patient safety:current
initiatives risk shifting responsibility. Joint Commission Journal on Quality
and Patient Safety, 2005; 31: 483-494.
Entwistle VA, Watt IS, Gilhooly K, Bugge C, Haites N, Walker A. Assessing
patients' participation and quality of decision making: insights from a study
of routine practice in diverse settings. Patient Education and Counselling,
2004; 55: 105-113.
Health-related research: policy and practice
(Including papers relating to: service user and public involvement in research;
research recruitment strategies and ethics; miscellaneous methodology)
Ryan M, Watson V, Entwistle V. Rationalising the 'irrational': a think
aloud study of discrete choice experiment responses. Health Economics.
2009; doi: 10:1002/hec.1369
Entwistle VA, Calnan M, Dieppe P. Consumer involvement in health services research agenda setting: the MRC Health Services Research Collaboration's contribution and the persistent questions of value. Journal of Health Services Research and Policy, 2008: 11 (3 supp): 76-81. Doi: 10.1258/jhsrp.2008.007167.
Williams B, Entwistle V, Haddow G, Wells M. Promoting research participation: why not advertise altruism? Social Science and Medicine, 2008; 66 (7): 1451-1456.
Campbell MK, Snowdon C, Francis D, Elbourne D, McDonald AM, Knight R, Entwistle V, Garcia J, Roberts I, Grant A. Recruitment to randomized trials: strategies for recruitment and enrolment and participation study (The STEPS study). Health Technology Assessment, 2007; 11 no. 48.
McDonald A, Knight R, Campbell MC, Entwistle VA, Grant AM, Cook JA, Elborne DR, Francis D, Garcia J, Roberts I, Snowdon S. What influences recruitment to randomised controlled trials? A review of trials funded by two UK funding organisations. Trials, 2006; 7: 9.
Entwistle VA. Involving service users in health services research. In:
Bowling A, Ebrahim S (Eds). Handbook of health services research methods: investigation,
measurement and analysis. Milton Keynes: Open University Press, 2005.
pp535-554.
Langston AL, Campbell MK, Entwistle VA, Skea Z. A centralised public
information resource for randomised trials: a scoping study to explore desirability
and feasibility. BMC Health Services Research, 2005; 5: 39 (24 May 2005).
O'Donnell M, Entwistle VA. Consumer involvement in research projects: the activities of research funders. Health Policy, 2004; 69: 229-238.
O'Donnell M, Entwistle VA. Consumer involvement in decisions about what health related research is funded. Health Policy, 2004; 70: 281-290.
Public health ethics
Skea ZC, Entwistle VA, Russell EM, Watt IS. 'Avoiding harm to others'
considerations in parental measles, mumps and rubella (MMR) vaccination discussions
- an analysis of an online chat forum. Social Science and Medicine, 2008;
67: 1382-1390.
Entwistle VA, Carter SM, Trevena L, Flitcroft K, Irwig L, McCaffery K,
Salkeld G. Communication about screening: a proposed new direction. BMJ,
2008; 337 (221) a1591. doi: 10.1136/bmj.a1591
Potter BK, Avard D, Graham I, Entwistle V, Caulfield T, Chakraborty P, Kennedy C, McGuire CG, Griener GG, Montgomery M, Wells GA, Wilson BJ. Guidance for considering ethical, legal and social issues in health technology assessment: application to genetic screening. International Journal for Technology Assessment in Health Care, 2008; 24 (4): 412-422.
Potter BK, Avard D, Entwistle V, Kennedy C, Chakraborty P, McGuire M, Wilson, BJ. Ethical, legal and social issues in health technology assessment for prenatal/preconceptional and newborn screening: a workshop report. Public Health Genomics, 2009; 12: 4-10. doi: 10.1159/000153430
Recent Editorials for Health Expectations
Entwistle VA. When service users' support obscures problems with care: the
need for rigorous research into patients' experiences. (Editorial). Health
Expectations, 2009; 12 (2):
Entwistle VA. Public participation in health service governance and development:
questions of potential for influence (Editorial). Health Expectations,
2009; 12 (1): 1-3.
Entwistle VA. Hurtful comments are harmful comments: respectful communication
is not just an optional extra in healthcare. (Editorial). Health Expectations,
2008; 11 (4): 319-320. Doi: 10.1111/j.1369-7625.2008.00527.x
Entwistle VA. Supporting participation in clinical research: decision aids for trial recruitment? (Editorial) Health Expectations, 2008; 11 (3): 205-207.doi: 10.1111/j.1369-7625.2008.00519.x
Entwistle VA, Williams B. Health literacy: the need to consider images as well as words. (Editorial) Health Expectations, 2008; 11 (2): 98-100.
Entwistle V. Offering choices. (Editorial) Health Expectations, 2008; 11 (1): 1-2.
Entwistle V. Considering 'balance' in information (Editorial). Health
Expectations, 2007; 10: 307-8.
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