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Dr Janice Rattray, School of Nursing and Midwifery, University of Dundee
Ms Cheryl Crocker, Nurse Consultant Critical Care, Nottingham City Hospital
NHS Trust
Dr Martyn Jones, SDHI.
This study is part of a developing research theme assessing both short and long-term outcome from intensive care and to establish the associated factors. Many patients have little or no recall of factual events of the intensive care experience (Hall-Smith et al. 1997; Russell 1999; Jones et al. 2000). The memories described are often of unpleasant events and patients describe delusions, 'dreams and hallucinations' that are frightening and persecutory in nature (Russell, 1999; Jones, 2000;Green, 1996). Narrative accounts of the experience and the content, duration and type of dreams and hallucinations (Greer, 1979; Granberg, 1999; Green, 1996; Russell, 1999) are often described some months after the experience, although it has been demonstrated that patients may recall important aspects of this. Studies suggest that this experience may subsequently affect both short and long term psychological outcome from intensive care, e.g. (Sawdon et al. 1995; Dyer 1995b; Turnock 1997). These studies have used a variety of non-standardised assessments of patients' experiences of intensive care, and little systematic exploration such an experience has been undertaken. For research in this area to advance and for the results to have applicability in another setting a systematic standardised assessment of the intensive care experience is necessary.
1 To explore the relationship between the intensive care experience and
anxiety, depression, and post-traumatic stress at time of hospital discharge,
and at two and six months.
2 To examine the cross-sample reliability and construct/predictive validity
of the ICEQ in a second independent critical care service (Mid Trent Critical
Care Network) .
As part of a recent study funded by the Chief Scientist's Office (Title:
Quality of Life after Intensive Care: Assessment and Prediction (K/OPR/2/2/D330)
patient's perceptions of the intensive care experience have been explored
at the point of hospital discharge in the North-East of Scotland. Based
on preliminary evidence from patients and staff, a 31 item Intensive Care
Experience Questionnaire (ICEQ) was developed and piloted. This was administered
to 109 patients. A principal components analysis (N=109) led to the retention
of 24 items, and suggested the existence of 4 domains, i.e. 'awareness'
(9 items), 'fears' (6 items), 'memories' (5 items), and 'satisfaction
with care' (4 items). Initial psychometric evaluation of the ICEQ has
shown the initial reliability of each domain (Cronbach's > 0.70 for
each domain) and provided initial evidence of the construct and concurrent
validity of the measure.
Prospective analysis in this setting following 80 patients some 6 and
12 months after discharge has revealed that levels of anxiety and depression
remain high in this patient group. This mirrors similar findings from
Scragg et al., (2001). In addition, IES scores appear to remain high up
to 6 and 12 months after discharge in some patients.
This current study will evaluate whether the questionnaire developed with
patients from one centre (Dundee) performs equally successfully with patients
from other centres. We need to explore the reliability, construct and
predictive validity of the 4 domain structure of the ICEQ with a new cohort
of ICU patients in a different and independent setting. If the intensive
care experience is predictive of future patient adjustment, and this can
be confirmed in an independent setting with a new cohort of patients,
this is likely to have important implications for the delivery of critical
care services.
It is important to establish that the measure performs satisfactorily
in a second setting before allowing more generalization (research questions
1 & 2). Therefore the ICU teams from the Mid Trent Critical Care Network
(see appendix 1 for units within Mid Trent Network) are collaborating
with Dundee on this project.
This study is funded by the School of Nursing and Midwifery and the Mid
Trent Network
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